Better Life Appeal
Our Million Pound Appeal
The Better Life Appeal supports the All Wales Adult Cystic Fibrosis Centre based at Llandough Hospital. This is the only adult Cystic Fibrosis centre in Wales caring for almost 250 patients. Young adults transfer to the adult centre from paediatric services in Wales at the age of 16-18. By 2015, it is expected that we will be caring for upwards of 350 patients from Wales with Cystic Fibrosis. Demand is increasing.
The centre aims to provide its patients with the best care, support, advice and encouragement to meet the needs of each individual and their families with this life-long disease.
The goal of the Better Life Appeal is to improve services by providing patients with the most modern medical equipment available. The advances in medicine and technology mean that patients are living longer and today the average life expectancy is 31 years compared to less than 10 years ago when CF patients would not be expected to live beyond their teen years.
As our patient numbers grow, so has the CF multidisciplinary team. This means that the centre has been able to expand and we have launched the Better Life Appeal to support the growth of services to our patients.
We need your help to develop our specialist centre. Phase 2 of our Appeal requires �1m to adapt the second floor of our facility into a specialist in patient ward. This will allow us to increase the number of beds available to patients, and to develop the overall package of treatment available to patients with cystic fibrosis in Wales.
We are based at University Hospital Landough in the Vale of Glamorgan, but our patients are from across Wales as we are the only centre of this kind in the country. Please help us to provide a fantastic new facility to support cystic fibrosis patients in Wales, and check out our A-Z of fundraising ideas on how you could choose to support us.
How the Appeal is helping?
The Better Life Appeal has to date been able to: refurbish and equip six new rooms which now house the specialist nurses and research nurse; provide an outpatient treatment room; specialist physiotherapy room; CF patient gym; clinical psychologist room and a necessary storage room.
Internet facilities have been installed in all patient bedrooms on the CF ward as well as on one of the outlying wards which is invaluable to those patients who travel long distances for their care. Internet provision enables our patients to keep in contacts with their friends and family, as well as to use for day to day internet exploring! Patients who are studying or working can keep in contact with their tutors, workmates and their employers.
We are currently seeking funding for new technology, such as portable ventilators for home and hospital use which is essential for the care of our patients. The ventilators can help patients with physiotherapy during severe exacerbations and if patients develop sudden respiratory failure. They can also be used to help patients breathe long term whilst waiting for a lung transplant.
If you would like to speak to us to discuss fundraising, please contact the Charity office on 029 2184 1802, and mention the Better Life Appeal.